Your Family

May 5, 2010 1:12 PM by Carina Corral

Promising news for a Los Osos teen battling rare disease

Promising news for a Los Osos teenager facing a double lung transplant.

KSBY News first brought you the story, back in March, of 18-year-old Holly Navolt, who has cystic fibrosis, a rare genetic disorder that only affects about 70,000 people worldwide.

On Monday, Navolt was placed on the National Transplant Registry.

She hopes to receive a transplant within three months.

On May 22, the community is invited out to a Hike for Holly.

In an earlier interview with KSBY News, Navolt had said, " I would really like it if people would show up, I always like meeting new people, and the help would be greatly appreciated. But, I also want them to know that I'm not the only one out there who is battling with cystic fibrosis, and that needs a lung transplant."

The 5k Run/Walk fundraiser will be held at Tar Springs Ranch in the Huasna Valley of Arroyo Grande.

A suggested donation of $40 will help her family reach its goal of $100,000 for Navolt's transplant.

"We are also inviting the community to come and enjoy in the post race event even if they don't participate in the race. We will be having a BBQ, live music, bounce house, petting zoo, and some local vendors," said one of the event's organizers, Amber Pinon.

People can register online at www.cotaforhollyn.com under the event section or mail registrations to:
P.O. Box 623
Arroyo Grande, CA 93421
Attn: Amber Pinon

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