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‘Seeing is Believing’ 5k run raises money for rare disease research

Posted at 6:03 PM, Sep 14, 2018
and last updated 2018-09-14 21:03:37-04

The Pismo Beach community united early Saturday to raise money for research of a rare, genetic hereditary disorder that causes severe vision loss and blindness in infants and children. 

Anthony Ingram was diagnosed with Leber’s Congenital Amaurosis (LCA) when he was about three months old. According to his website, when his parents found out, they were devastated, but with strong support from family and friends, they are tackling the disease and working to provide Ingram with as many resources as possible. 

In June 2013, his family said doctors found the muted gene Ingram has, which is the CRX gene, the rarest of the 19 known genes to cause LCA. With some clinical trials, vision can be partially restored to patients. 

To help Ingram’s odds, his family holds two events each year to fund further research into LCA. 

The third annual Anthony’s Seeing is Believing Pismo Beach 5k walk-run was held September 15.