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First Angelman Syndrome Walk to take place this weekend in Atascadero

Posted: 3:44 PM, May 10, 2019
Updated: 2019-05-10 22:21:14-04

People in northern San Luis Obispo County are walking to help find a cure for a rare genetic disorder.

Saturday, May 11 is the inaugural Angelman Syndrome Walk in Atascadero.

Organizers are joining 50 other communities nationwide to raise money for the Angelman Syndrome Foundation.

For a Paso Robles family and their four-year-old daughter, this walk is extra meaningful.

Logan Lowe was just 8 months old when she was diagnosed with the disorder.

The preschooler takes daily medication for seizures and attends physical therapy once a week.

“The not being able to walk makes it hard so we’re kind of carrying her around everywhere. If we’re out and about, we always have to have some sort of a stroller or chair for her to push her in. The non-verbal is probably one of the hardest things. Most of them are non-verbal,” says Logan’s mother, Kayla Lowe.

Logan Lowe and her mom, Kayla. KSBY photo

 

The neurological disorder affects about 1 in 15,000 people and Logan is one of three known cases on the Central Coast.

The walk will start at 11 a.m. on Saturday. Registration begins at 9 a.m. at the Atascadero Lake Park Bandstand.

Click here for more information.